I wonder if you guys out ( envision my hands splayed starting at the middle front of me, and then swooping out wide) thereeeeeeee.....ever write an entry that right after you've posted you become irritated with yourself (now envision me looking at you with inquiring eye gestures) by the content? Because I do, I have, and a good example is my last one.
The truth is in the pudding, my last entry for example, although my ailments are annoying, somewhat concerning and downright agitating at times, I shall live. I will continue to be me, I will adorn my battle gear every time I go outside and I will continue to flip off the sun with my middle finger in the most enduring way I know how. But my entry was simply the outer rung of a ring of concerns I carry lately. Not for myself, but for others.
Because, although I've always been vigilant about my skin care, the honest moi needs to acknowledge I had the cards of fate stacked against me to begin with. I know this because I take so much after my dear Father and he has skin cancer as well. Since I am fiercely protective, I would never blame him for my ailments, but there, that's out there as well.....Genetic Inheritance at it's finest.
His skin cancer is the most common of all, I actually have up stepped him by going straight to squamous cell cancer a level higher.....His is Highly treatable, won't kill him, and he's been dealing with it for a long time. But......in him I see a piece of my propensity filled future.
Although Basil cell skin cancer is the baby of the group, it has a nasty side and my Dad will start paying the price for it tomorrow. El Doctors Slice and Dice will be removing one whole side/half of his nose tomorrow.....(yes, the basil cells have grown fingers all up through his nose, tiny red dot on the outside, a whole party train growing on the inside)...then on Friday he goes back for more surgery to start the cosmetic reconstruction of a nose taken by a simple, highly treatable, non worrisome skin cancer. So in my female/mere human perspective, I have a moment of Holy fuck, that could be me, holy shit, I hope he's ok, holy hell, I'm worried, for a varied number of reasons.
This is probably far more detail than really warranted on my journal, but it's my party and I'll explain if I want to.......So, in order to recreate a nose, they will borrow cartilage and skin from various other body parts. Once that's installed, they will then start the long drawn out process of cutting his cheek skin and forehead skin in order to 'pull it' over the hopeful nose to be, and let it 'grow' for a bit with the help of balloons and skin stretching. Once and hopefully that comes together, they will again surgically try to create the resemblance of a nose. Brilliant.
I personally think that entire process sucks. Eloquent I know. But sucks with a capitol S. So now you know why I'm a wee bit paranoid and sensitive of my own sketchy skin future. It's akin to riding a canoe down a river, I am following my Fathers wake and he's hours away from going off a recoverable waterfall I will someday be going off. The difference is, unlike my Father, I skipped stage one skin cancer, went straight to stage two and I've had 9 (I think that's the current number) pre-melanomas (the Niagara Falls of all waterfalls) removed from my body...(my dads had one, uno)..and all of them are now swirling black and full of propensity behind my little boat.
Sigh. It is what it is. Well, now that I have that out and off my skin (pun intended) I need something else to focus on.
How about, I can't drink tea. I wish I could. I've tried, ohhh I've tried. I'm quite envious of people who can drink tea. I wish I knew how you tea drinkers can do it. I want the ritual. I want the fancy shmancy tea sets and a designated tea time to kick back and gaze out on the world.
I want to drink green tea, for all it's important health benefits. But when I've tried to gag it down I choke up, my eye's bug out and I run to the nearest sink to eradicate it's vile taste. I want to drink cinnamon tea's and orange tea's. I want to have an entire world of tea festivities and flavors at my beck and call, but alas, they all make me want to hurl.
I think it's really the ritual I covet. The, dip your little tea bag, or use those sweet strainers on a chain I see. I even want the fragile little tea set and I want to have a tea party...and I want a teapot to scream at me from my stove letting me know it's time to kick back......A forced focus of the simple things. There is little enjoyment to pulling back the aluminum ring on a diet coke. Sure, there's that moment of 'pop' a fresh soda can make, but otherwise, it's an empty ritual full of formaldehyde.
If I counted up the money I've wasted on tea over the years, searching for the elusive flavor I could learn to appreciate, well, I'm certain I could have purchased something that didn't end cold and poured (spit) in a sink. So, if you're still laboring through this long ass entry, and you're a tea drinker, I commend you, el lucky one.
I've decided to add Hospice volunteer to my little universe. I go in for 'training' later this week and believe I start next week with my first patient. I'm not sure why I decided to do this, other then I would like to believe people at the end of their lives might have something to say, and I would like to hear it.....really hear it. My understanding is I'm just a visitor, I can read to them, talk to them, and simply be someone who cares. I like that. The only piece I'm worried about, is the obvious, losing them in the end and that end is soon for any hospice patient. I'm not sure how I will contain that factor inside myself, but I'm sure I'll work it out. Has anyone else done this out there? If so, I would love to hear your perspective on what to expect.......................
Ok, that's enough rambling for one day. This entry should count as two, one for thoughts, two for sheer random space quantity................

23 comments:
Explanations and thoughts in your head understood. Very normal I'd say. But then who would say I am normal?! ;o) I have not done the hospice thing. But I did tend to my mother in law in the last week of her life and I treasure that time I spent with her. - Barbara
I'll teach you how to drink tea if you promise to invite me to your little tea party.
First, drink a cup of hot water.
Then, drink a cup of hot water with lemon in it.
Now, you're pretty much ready to start drinking any kind of tea. Just add some sugar if you need to, perhaps some booze, and you're good to go. Hot liquids rock!
If that doesn't work, well... drink coffee.
Tell your dad good luck for me.
-Dan
http://thewisdomofadistractedmind.blogspot.com/
Maybe your entry is a warning to me. Nothing is ever cast out into the universe adrift. There's a spot for every thought to land. Like you, I've been in the sun all my life and have had a few little pre-cancerous hoo-hah's snipped off. Keeping Dad in my thoughts.
forget tea, in your situation I advocate proceding directly to whiskey.(trying to add a little levity here)
I have always had an interest in what happens at the end of life. Hoping for reassurance that it's not as scary as I fear, perhaps. I would llike to hear all about it.
Marti
You're concerned for your dad. Good wishes going his and your way.
:::raising hand:::...self confessed tea-a-holic here...hot. Dan actually has a good approach there. Trick is this...don't go for all those dried out (quite literally) pre-made tea bags. Kinda' like canned foods...there's very little benefit...and less flavour. I drink green tea all day (with and without honey...no sugar...bleh...defeats the purpose, really). I re-use the leaves three times for one pot...after the first pouring, it's decaf, anyway (that's how decaffination works). I'm a true tea junky...I have a huge stash of different teas for different "everythings". I'm tellin' ya...loose leaf makes a difference. I love it for the ritual too...but I'm a bit of a slacker in that, I have two huge tea-ish looking mugs that I love and alternate. I have one particular beautiful little thing of a tea cup that I only use for Chamomile. If green tea makes you gag...you've steeped it too long...it's become bitter...and you may have burned it...too high temp...pour just before boiling...it really is a non-bitter, smooth tea. Rooibos tea (the red) is WONDERFUL. Oh gosh, Rebecca...I could go on...
Don't kick yourself too much (I've done the same) on that entry...we all need to yerp every once in a while. Oh...;)...and let me introduce you to MY genetic behstehds...chin hair, meet Rebecca...Rebecca, chin hair...oh...and here...these are all my fat genes...every frikkin' one...they ALL come..any time they can...oh!...and I can't forget this one...this is Hypothyroidism and her cousin Diabetes (we are very distant, as yet...Diabetes and I). We've got more family...they'll come along soon enough. (((Rebecca)))...no worries, Girlie...you just keep loving what you do...fully. ;) C.
Oh, it took me a bit to get used to green tea, I found that what I had in Tokyo was much stronger than what I drink now. I don't let the tea get too strong, it does get bitter...experiment and keep it light and hot. The benefits are many so if you can get over your gag reflex it would be good for you dear. Keeping your Dad in my thoughts and prayers. My Dad is the same way, overdid in his youth with the outdoors...horses, working for Sunny Fitzsimmons - from the time he was 14, so many years. So now he has that type of skin cancer too, and I know for a fact that I would too except I try to avoid the sun as much as possible. Whether or not my excesses as a child will come back to haunt me is another matter. All of us at one time or another need to vent, don't worry about it. I've never done Hospice, but I admire those people very much, the closest I came to it was when my Grandad was dying and I spent that last month with my Grandmom helping her with him at home. Life is not easy and this is a road that we will all go down some day, so any amount of comfort given is heaven sent....love, Sandi
okay-forst my question? You said "tiny red dots" on your fathers nose? Like that got me thinking about the tiny red dot on my left side of my stomach? Mmmmm I shall Google....
and I think what you are going to do it wonderful-I don't think i could do that-old people scare me-probably for the exact reason you are "doing" this. Mmmm another thought to ponder...
you always get me thinking!
I would also like to drink tea, and coffee! There is nothing like the smell of coffee in the morning... too bad it tastes so awful! I, like you, have spent money over the years hoping that I will suddenly start liking one or both drinks, but I fear I am stuck drinking my Cokes instead :( The only hot drink I have found I like is Hot Cocoa, which I can consume by the gallon in the winter time.
My best wishes for your father. Just figure that watching him will make you more vigilant of your own problems.
Rebecca,
Wow...the last two entries have been powerful. Where do I start? I don't know what I would do if I had to stop fly fishing. Like you, I have been doing it all of my life. I have cut back and have also had to deal with Basil cell cancer. The scar in the middle of my left cheek is there but not very noticable. I now use SPF1005 everytime I go out in the sun for any extended length of time.
Yes, I am a tea drinker. I react to coffee like you do to tea. I'll have a cup for you.
When my MIL was transitioning from this life to the next, Hospice helped. She died at home, in this very room as a matter of fact. Hospice was a God-send. It takes a special person to help the families as well as the one passing. I know you have a good heart. God bless you Rebecca. You will do well.
May the Lord be with you, your daughters and your father as he undergoes his procedure.
Smiles,
David
praying for your Dad and the doctors:) also praying for you my friend
Deb
have you tried Earl Gray tea? its my favorite then Constant Comment. I am not a big fan of green tea lol
Deb
Chalk up an other vote for Constant Comment Tea, bu Bigelows. My absolute fav, the de-caf of course. I also never put milk in mine, preferring instead to have it black with just a touch of honey or sugar stirred in. That is a rare treat as I basically don't really enjoy hot drinks very often at all! Sorry about your skin cancers. I reckon that's the best piece of advice my mom ever gave me. To stay out of the direct sunlight, and so I have, even though I do walk around looking a bit like a vampire in the summer, all pale and white.
Love,
Marie
http://journals.aol.co.uk/mariealicejoan/MariesMuses/
Any hospice social service job will be difficult. I've done all kinds of social work but the closest I came to an end of life situations was when I did advocacy for oncology patients. It broke my heart that there is not a damn thing I could do to get them better...
Hugs,
Dee
Your father's story reminds me so much of what I have watched my grandfather go through in the past 10 or so years. The guy is 90 ('pretty good, for a young fella' he always says...) and strong as an ox. He's had three surgeries - two on the side of his face and one on his eye. He also had skin taken from another part of his body for the reconstruction surgery (which I guess should be counted as surgery number four). I can tell you, he was really pissed off about the whole thing. He tried putting off the eye thing, as it was very invasive and risky. But that did help matters any, to say the least.
I'm not vain ~ I've always had issues with my appearance. Not flaunting it, that's for sure. But when Bell's Palsy took my face last summer, I felt completely violated and scared as hell. I thought I would look like the Phatom of the Opera forever. I'm still stiff ~ my eye still doesn't blink and I ALWAYS feel it, squeezing my cheeks and mouth, especially when I am stressed or tired. But for a while, I couldn't eat or drink or brush my teeth without dribbling down my chin. I still can't pucker... :o/
Dang, this comment-turned-novel was more than I intended it to be, and much more about me than what you've written here... Talk about wanting to delete (and believe me, I have probably deleted more words than I've written in my days via internet)! I guess I just wanted you to know that your journal made me think... Your strength and even your humor, are inspiring, Rebecca. I wish you all the peace and enjoyment that life has to give. Today, tomorrow and always.
Michelle
As for opening my mouth insert foot moments...umm all the time! Quite a few in journal entries that have been commented on and spit back at me.....
I think because like me, you know someone is seeing a very intimate side of you. Something that makes you worry, scares you....In my case anyway-I'm the one who has survived it all, so I'm suppose to be this tough exterior that gives strength and help to everyone else...Truth of the matter is we are human and there are those things that hold us at their mercy.
I can understand why your father's surgery would make you react the way you are. Your right Sucks is the word for it....However we can't predict the outcome of anything...including how your skin Cancer will end or not end up for that matter. As for being a Tea drinker..I have learned the art of it....I've also heard you can get the same effect from hot water a table spoon of honey and lemon...
I don't regret these last two entries hon. Your real, your feeling the world around you come unraveled at the seams a little bit lately. I wish I could offer some profound advice....At the end of the day all I can offer is my friendship and say "I'm Here".....(Hugs) Indigo
In the words of James Bond: "tea is a cup of mud."
-Paul
http://journals.aol.ca/plittle/AuroraWalkingVacation/
I love sitting with a cup of hot coffee or tea, kind of a ::sigh:: moment. It is an acquired taste and there are many different flavors that I don't think all "taste" like tea. How about some of the mint varieties? And personally, if I wanted the ritual and the fancy little cups and the "official" tea time, I'd put any damn thing I wanted to in my cup and call it good to go!!! How about some of the cute little petit fours, too.
I hope your Dad comes through everything okay. And you Can write about anything you want to in here. Putting a name to concerns and fears, constructing words for feelings, even questioning, that's all part of the process. Sometimes, just the act of expression will alleviate stress. Ya know?
Take Care, Leigh
Most importantly(at least to her), Briege is still playing with her "gift." Thank you.
Ailments tend to be a whole lot more annoying when they are our own.
I hope things are going as well as they can for your dad's surgeries. Working in medical I've seen people come out with what they have termed "better" noses. I would have never thought of that myself, but I can say some of the surgeons are amazing. I'm very sorry.
~Mary
{{{ Sweetheart }}} Did dad have to have the Mohs surgery? Where they do it with the grid? I am sending him well wishes. The key with the reconstruction is to not drink or smoke for at least the first 2-3 weeks... trust me, I know, I worked for plastic surgeons... people who abstain heal better...
As for seeing your future... heck... we all see that smacked up in our face now and again. You will persevere past it, I know. {{ hugs }}
be well,
Dawn
Hmm, stretching skin tight over noses made of knees. Sounds yummy. How's that Who song go? Hope I die before I get old? Then again, I could still get plastered after an operation like that, couldn't I? We used to pick up apples that had fallen off grandma's tree. The yellow jackets would have eaten parts, and we'd have to cut those away, but what was left was sweeter than the whole apples that were still on the tree, and I'd never call it anything but an apple.
Fred
p.s. Just to add to your woes, did you hear that the meds they've been handing out for epilepsy cause manic depression and possibly suicide? Might want to ask about that when you get your next does. (Though, what the fuck you're supposed to do about it, I have no idea.) Oh, and I used to drink tea, then I was pissing in a windstorm one day and tasted my own piss, thought, "This tastes just like tea."
I hope your Dads nose op goes ok. If you hate tea never try red bush tea, it's even worse than normal tea.
Gaz ;-)
Tea is important at times in life:) Please don't consider that investment wasted.
Ah, now I know. Your dad, you. I'm sorry, and do hope he improves SOON.
My bosses boss (I referred to her as BB in last summer's posts), is putting her dad in hospice later today. Of course they have something to say. We all do, just at that point in someone's life, those closest to the person SOMETIMES are either a) not there, or b) too caught up emotionally to truly hear it, or I suppose c) not whom the person wishes to relay a tidbit of info TO:)
Perhaps some people will even let you record your conversations.
Blessings to you. -- Robin
Green tea has always tasted like dirt to me.
Just saying.
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