Monday, May 22, 2006

Fires

When I was first officially diagnosed with epilepsy, I verbally balked to the doctor about being put on a daily medication of prevention. Up until that point, I had handled my seizures relatively fine, if anything, in my world they were simply an annoyance. Translation, I was a stubborn girl who thought she never, ever, needed nor desired additional help that wasn't directly controlled by the great and powerful Rebecca.

       As any good doctor will, she then tried the scare tactic. This neurologist is a sly one, and much to my irritation she spoke my language. 


       She said, "Rebecca, picture a campfire with 4 sticks on fire, small and insignificant. Now, throw a small stick on it and the flame will grow and get a bit bigger. Then picture adding another stick and then another, and so on. If you keep throwing sticks on that fire, it will eventually turn into a raging bonfire that cannot be controlled. Each time you have a seizure, it's like throwing a stick on that fire. Why don't we keep the flame minimal instead of letting the sticks pile up?"

       I'm not even here to write about kickin chicken moments and mind numbing seconds of frozen body parts. But, for the record, I have the ailment, so I can call it doing the kicking chicken all I want, it's my privilege.

       It's that irritating doctors metaphor that won't get out of my head these days. When I side the illusion up, comfy like, with the way I've been handling my life lately, I see remarkable similarities.

       My inability to admit I'm not doing well, my stubborn demeanor, my horrible habit of shutting, more like slamming the doors of communication down to anyone who bravely steps toward me when I'm feeling like my bonfire is out of control has been my detriment.

       My silence, to those online, those in my 3-D world, friends, family, loved ones in a world based on honor and simple human traits is not only unacceptable, it's deplorable.

       And unfortunately, it's me. It's my way. It's my Achilles heel. It's my self preservation blanket and my heavy chain of guilt to drag along inlife. My mode of silence and walls, is not reserved to any one person, although I can see why a person could interpret my silence as exactly that.

       When I feel like my fire has become an uncontrollable bonfire, I willing stand amongst it's flame and protectively turn my back upon the very people who care about me. When I am like that, when my world feels like a decent version of hell or just a beautiful swirling flame of confused thoughts, I want no witness, I want no voices, I cannot stand for others to see, observe, hear, touch, live, or experience my problems.

       That Achilles heel is extremely tricky to explain. Because for one, it could make me a very bad friend to have around. At a days notice I could withdrawal and slither into my hole of illusions and silence, the next I could be as receptive as any other friend a person has in their cache of phone numbers. In all honesty my Achilles heel, makes me not such a great friend to have on the rooster of dependability. It takes a good hard sense of understanding, or at least a teacup of friendship passes to be an active part of my life.

       It's a struggle for me sometimes, because I feel so very different from the majority of the people I know. I have friends who call me because they broke a nail and it hurts. I don't mind at all that they do that. I have friends who call with every bump and bruise, physically or emotionally, and I'm good with that. Yet, they all know I will never call with the same ailments. For example, a few years back I almost died over something and was in the hospital for days and days, and I never called a person nor told anyone. It just isn't in me to divulge whats going on in my life with anyone. I'm fine with keeping it that way, but I run into the problem of hurt feelings, misunderstandings and downright making people mad by my quiet nature.

       I create something I reflectively describe as fault lines. The longer I am quiet, the wider the fault line can become. The more time that passes, like in this journal, that I maintain my silence, the harder it becomes to face it and close the seams of my mute nature.

       Writing here, is a first step in a long fault line of silence for me. Next, I know I need to pick up the phone and apologize to people I care about. I find I canhold my phone in my hand for hours willing myself to make a call and just cross that fault line. Fault, is my burden, because even in innocence, silence cuts a scar of fault across my thoughts and I become cut farther and farther off at the knees the more time I let pass. Fear and fault, fault and guilt, guilt and accountability. All a beautiful mixture that makes me......me.

       I wonder about that fire. The one I can either add sticks, or dose with water. How much do I really add to it's flames is something only I can observe. I think I've allowed others to toss a few branches on my fire, but I'm the one who's thrown the logs on it. The bigger it got, the more quiet I became. The more intense it became, the clamps of silence took hold and I'm just now starting to break from it's flames.

       What I could have probably wrote today, instead of this jumbled entry that went on longer then a Virginia Wolf sentence, is, I apologize for my silence and those I may have offended. I thank those that emailed and commented about my absence, I appreciate the concern and well wishes.

       And most of all, hopefully understanding can be found in written words...............

29 comments:

Anonymous said...

Hmmm...  I am at a point in my emotional journey where I wholly identify with what you have described.  I am so removed from all around me that my recollection of conversations, scheduled appointments and nearly everything else has escaped me.  Your birthday for one!

Sometimes just knowing others who are in a similar pit makes the down right crappiness of it all seem a bit less.  Guilt can be attached to nearly every move, word or lack of either.  Make amends with those you feel you have to, the rest of us are in total understanding.  :)

From one crackpot to another, take care.
Tammy
http://lifeliveitormissout.blogspot.com

Anonymous said...

Hey some people complain about there pain more than others.  Not talking about your ailments or how you are feeling isn't a flaw.  Your, You: It's your decsion to tell others how you feel.  A broken nail is nothing compared to epilepsy.  Some things are easier to talk about compared to others.  My mother is in the mist of a battle and she chooses not to tell our family (her brother and sisters) about it.  No need to apologize Rebecca.

Glad to hear from you and glad your okay!

Charles

Anonymous said...

Highest of hopes is always extended to you... no apologies necessary ~ sometimes an absence is what is needed to take time, to be silent, and to try to understand.  It's hard enough without all the hubbub of life's interuptions.  Hope you are on the road to feeling better.  hugs, michelle

Anonymous said...

One thing that I have learned over the years is the ability to pick up the phone and call someone when I am having a difficulty.  Years ago I went through a lot of crap in my life and I kept it all in.  I was ready to blow my head off.  Talking with others is my emotional/spiritual shower.  It cleans all the crap off me that build up everyday.  Just like not having a normal shower makes me feel yuck so does this.  It is also a good reminded that I am not alone and I need others to stay well.  Good luck.  ~ Mike

Anonymous said...

And then there are those of us who have been out of touch with you as well, for which we apologize.

Anonymous said...

To me, you owe no appology.  But I'm hoping God puts at least one person in your life you feel you can/should call about a broken nail or a hospital stay.  ;o)  -  Barbara

Anonymous said...

I'm glad you're alright.  I, for one, have missed your words terribly.  Yes.  I know I am selfish.  

Trust me, I can definitely sympathize with your "Achilles' heel."  I've slammed the same doors, but, unlike yourself, I've also nailed many of those doors shut.  

-Dan

Anonymous said...

As someone who often does the same, I know that it's important to hear 'it's ok - no problem' from those you feel you've hurt. Even though you know that you don't have to apologize, part of our poison is the neverending need to reconcile in moments of clarity. So, all's good.

And no misunderstandings here. It's not like I've taken you up on YOUR offer to send my troubles into the void :). I'm just as stubborn as you, and my friends have begun to yell at me for it. If only they knew what it was like!

Be well,
Charley
http://journals.aol.com/cdittric77/courage

Anonymous said...

Hi,
I came across your journal in relation to the VIVI awards last year. I want to compliment you on this entry, which is extremely well written. That cannot have been easy. Well done.

http://journals.aol.co.uk/pharmolo/NorthernTrip

Anonymous said...

wow i did not know you had epilepsy. this is a great entry:) have a good week

Deb

Anonymous said...

Just a voice from the shadows, but the first rule of friendship is to accept a person as they are. There are individuals that feel if you don't share your life woes as they do your breakin an oath of friendship. That is a very selfish perspective, the reality is we all deal with pain differently, you just don't like the noise. You find strength in silence and stillness which is why you love fishing so much and why you find solace in nature. It is where you draw your power. Some people resent your abililty to deal with life alone because they can not, so rather then to learn from your example they throw guilt your way making you find fault in how you deal with life. Be you darlin, thats the rule and whoever can not accept you for who you are is not worth the effort of friendship.
                                          love Always Jazz
                 http://journals.aol.com/desoulsheartbeat/JUSTATHOUGHT/

Anonymous said...

Hugs to you...I too suffer with hiding and trying to avoid those whom I care for very much when things go astray...and it is so hard to get back in the loop....I am so glad that all is well with you..you have been on my mind...As a matter of fact I was just thinking of you while I was doing dishes tonight...strange...but true...If ever...and I am sure that it seems strange...but if ever you need a ear or anything...email me or IM me..I am here...keeping you in my thoughts and prayers...TerryANn

Anonymous said...

Ditto on what Chuck wrote...
Although popping in to see if you had written or 'assumed; you were busy on your other creative endeavors...still makes no excuse for not at least making an inquiry...
beautifully written and expressed Rebecca...

Jodi

Anonymous said...

I have missed you and your writing and am glad to see you.  I wasn't offended or hurt.. I know how it feels to just not have the drive to be online or want to post.

But for your off line friends and family.. that you may have shut off from..and not share the real you with.. why?  Is there a fear that if you let others see your softer side or your hurts that they will own you? Or do you think if you keep your hurts to yourself you are saving others from unnessary worry?  Just an observation and a bit of pop psychology.

(((HUGS)))
Much Love,
Mary

Anonymous said...

Glad you are back.  Understood.  BTW you left for a bit leaving us readers with a beautiful entry, and maybe subconsciously, it was meant to be to honor the beautiful life of a beautiful woman by another beautiful person.  Thanks.

Anonymous said...

Just drove by to say hello.  take care,
Dwana

Anonymous said...

I'm glad you are back writing. From my perspective (you can take it for whatever it's worth or nothing at all... your choice), it sounds like the first person you need to seek forgiveness from is yourself. You are who you are Rebecca... warts and all. All you're doing is processing life. How you choose to react to it is what makes you who you are... You were hurting when writing about Pamela. While a beautiful tribute to an extraordinary person, you exposed the pain and hurt inside of you. Not just over losing someone who touched your heart...  Going back and withdrawing made perfect sense to me. How long each of us chooses to do that is our own choice. Just remember Rebecca, as many steps as you feel that you've walked away from life and those you care for... It's only ONE step back... because the people that care about you the most are those that know your imperfections, and still say yes and embrace you... A more cynical way to put it: Don't beat yourself up Rebecca... pain is mandatory- suffering is optional!

God Bless,
Mik

Anonymous said...

Friends are like sparkling diamonds.  They symbolize love, devotion and support.  They bring joy and happiness and, just like mesmerizing and breathtaking bling, everything becomes balanced and harmonized in the world.  We should all be so lucky to have friends like you, and bling like that!
It's all good.  Yes, it's all very, very good.
Judith

Anonymous said...

I'm happy that your back and that's why I started my journal was to vent really. I hope you are feeling better.

Anonymous said...

There was once a time when there were things I held back, things/feelings I should have talked about and didn't. People were good about it, left me alone with my feelings. Except for my husband. He prodded and prodded until I finally broke and let it all out. And you know? I think the reason I held it all back was because I was afraid to acknowledge it. To say it was to make it real. I think I had felt that if it wasn't said, then I could ignore it. Thankfully, my hub wouldn't let me do that. Once it was said and acknowledged, I found that I could move on. I could let go.

You may not want one, but just let it be known, if you ever should need an ear or a shoulder, I am here.

Ari

Anonymous said...

Dear Rebecca, you may have already noticed that many of your friends and readers can hear through your silence just as clearly as any words you might write or speak.  Its nice to see you writing again.  

Anonymous said...

I hate seizures....first the IRS agents come in with their moving trucks and start taking all of my good stuff.  Oh wait.....I see;)

When I was on 400mg of dilantin for seizures, for the first time in my life I had dreams in color and they continue to this day.  I could also fall asleep in 5 minutes flat.

Kickin' chicken....I like that.  I used to joke with Alexis that if I went into seizures during sex, she might just think I was doing really good at it (sex) and not even notice I was seizing.  

Great to have you back.  

Chris
http://inanethoughtsandinsaneramblings.blogspot.com/

Anonymous said...

No wise words of wisdom, no sage comments or irreplacable advice.  Simply have been away from the blogworld for a while and was good to come back and catch up on the slices of life I came to feel involved in, yours being one of them.  It is good to see you are still fighting forward, and facing the fires with what is your strength..your self honesty and the humor with which you see life, no matter how fall short its jokes fall.

Jessica

http://www.thewatersedge.us/QuickSilver/

Anonymous said...

Hey, Rebecca.... this entry hit home with me, because I am the same way.  This journaling thing was to be my honest attempt at opening up, but I still find myself witholding anything that I feel would reveal too much of my 'real life.'   Oh, I have shared a few things here and there, but nothing too revealing.  I have been taught all my life not to 'air my dirty laundry', and I guess I learned my lesson well.  The sad conclusion I have come to, though, is that my writing will never ring true until I can quit censoring every other word, and just let things flow as they will.  Maybe not impossible, but for me, extremely difficult.  Tina

Anonymous said...

Stubborn! That's all I have to say. I'm glad to know you're okay, though I knew that already.

Anonymous said...

Wow... beautiful powerful entry and it really spoke to me about some things in my life right now too.  I thought you had gone over to blogspot world never to return... glad I decided to click an old link today...

be well,
Dawn

Anonymous said...

PEAS IN A POD comes to mind Boise gal !
Infact the fact that i havent even discovered this entry till now just makes it even more clear that i share a very definate similarity on the way i "handle" things when it all becomes a little too much in the old mindspace .
Yep....i too do the whole " disapearing act " and go for a more absent approach when i just cant figure out where the hell im heading or ive been and so i can relate to the whole feelings of guilt etc that come when you realise you have at least 20 odd emails comments calls etc that havent been answered .
And im betting like me its not because you dont want to answer , its not because you dont appreciate or infact need to talk about things , its generally born out of having go over things so much in your own head that you simply dont know anymore WHAT the hell to say that could possibly explain it to others .
Hey then of course if your heads anything like mines you will do the whole thang where you let a day become a week then a month then a year till the thought of writing or responding seems almost impossible because ya think "ive been so bad at doing it they will think who the hell is this ?" hehe
Well Rebecca from one stubborn silent type to another theres always a free ticket on the guilt thang in my inbox if ya ever feel the need for a good old ten page ramble out of the blue ....i never close doors on friends and hey since im as blinking bad keeping up on here i could never hit you with "where the hell have YOU been " hehe
Take care and go easy on the deplorables .....its more of an understandables .
Shaz x

Anonymous said...

I just found your blog. Oh my, am I glad I did. I'm sorry to hear that when your needing a friend, at times they dont come. I understand that too. You see, your stronger than most people. Your giving, and you take the day for what it is. Many dont give back. I'm strong in my circles too and I prefer the mountains to a social outting.  I dont know if you tell your friends how you feel or if you keep it to yourself. Well, my name is Raven. Nice to meet you.

Anonymous said...

Although I'm not sure how accurate your doctors metaphor was I do think it was a unique one..

I never could decide which has done more harm to me the meds on my memory, or the seizures on everything?